Statement of Principles concerning autosomal dominant polycystic kidney disease (Balance of Probabilities) (No. 36 of 2023) (Cth)

Statement of Principles concerning AUTOSOMAL DOMINANT POLYCYSTIC KIDNEY DISEASE (Balance of Probabilities) (No. 36 of 2023) The Repatriation Medical Authority determines the following Statement of Principles under subsection 196B(3) of the Veterans' Entitlements Act 1986.

Dated 24 April 2023.

The Common Seal of the Repatriation Medical Authority was affixed to this instrument at the direction of:

Professor Terence Campbell AM Chairperson

Contents 1 Name 2 Commencement 3 Authority 4 Repeal 5 Application 6 Definitions 7 Kind of injury, disease or death to which this Statement of Principles relates 8 Basis for determining the factors 9 Factors that must exist 10 Relationship to service 11 Factors referring to an injury or disease covered by another Statement of Principles Schedule 1 - Dictionary 1 Definitions

1 Name This is the Statement of Principles concerning autosomal dominant polycystic kidney disease (Balance of Probabilities) (No. 36 of 2023). 2 Commencement This instrument commences on 23 May 2023. 3 Authority This instrument is made under subsection 196B(3) of the Veterans' Entitlements Act 1986. 4 Repeal The Statement of Principles concerning autosomal dominant polycystic kidney disease No. 40 of 2015 (Federal Register of Legislation No. F2015L00005) made under subsection 196B(3) of the VEA is repealed. 5 Application This instrument applies to a claim to which section 120B of the VEA or section 339 of the Military Rehabilitation and Compensation Act 2004 applies. 6 Definitions The terms defined in the Schedule 1 - Dictionary have the meaning given when used in this instrument. 7 Kind of injury, disease or death to which this Statement of Principles relates (1) This Statement of Principles is about autosomal dominant polycystic kidney disease and death from autosomal dominant polycystic kidney disease. Meaning of autosomal dominant polycystic kidney disease (2) For the purposes of this Statement of Principles, autosomal dominant polycystic kidney disease: (a) means an autosomal dominant genetic disorder, which involves the development of multiple bilateral renal cysts and enlarged kidneys, associated with gradual deterioration of renal function, and may involve cysts in other organs such as the liver; and (b) excludes autosomal recessive polycystic kidney disease, medullary sponge kidney disease, medullary cystic kidney disease and acquired cystic disease of kidney. (3) While autosomal dominant polysystic kidney disease attracts ICD-10 -AM code Q61.2, in applying this Statement of Principles the meaning of autosomal dominant polysystic kidney disease is that given in subsection (2). (4) For subsection (3), a reference to an ICD-10-AM code is a reference to the code assigned to a particular kind of injury or disease in The International Statistical Classification of Diseases and Related Health Problems, Tenth Revision, Australian Modification (ICD-10-AM), Tenth Edition, effective date of 1 July 2017, copyrighted by the Independent Hospital Pricing Authority, ISBN 978-1-76007-296-4. Death from autosomal dominant polycystic kidney disease (5) For the purposes of this Statement of Principles, autosomal dominant polycystic kidney disease, in relation to a person, includes death from a terminal event or condition that was contributed to by the person's autosomal dominant polycystic kidney disease. Note: terminal event is defined in the Schedule 1 – Dictionary. 8 Basis for determining the factors On the sound medical‑scientific evidence available, the Repatriation Medical Authority is of the view that it is more probable than not that autosomal dominant polycystic kidney disease and death from autosomal dominant polycystic kidney disease can be related to relevant service rendered by veterans or members of the Forces under the VEA, or members under the MRCA. Note: MRCA, relevant service and VEA are defined in the Schedule 1 – Dictionary. 9 Factors that must exist At least one of the following factors must exist before it can be said that, on the balance of probabilities, autosomal dominant polycystic kidney disease or death from autosomal dominant polycystic kidney disease is connected with the circumstances of a person's relevant service: (1) inability to obtain appropriate clinical management for autosomal dominant polycystic kidney disease. 10 Relationship to service (1) The existence in a person of any factor referred to in section 9, must be related to the relevant service rendered by the person. (2) The factor set out in subsections 9(1) applies only to material contribution to, or aggravation of, autosomal dominant polycystic kidney disease where the person's autosomal dominant polycystic kidney disease was suffered or contracted before or during (but did not arise out of) the person's relevant service. 11 Factors referring to an injury or disease covered by another Statement of Principles In this Statement of Principles: (1) if a factor referred to in section 9 applies in relation to a person; and (2) that factor refers to an injury or disease in respect of which a Statement of Principles has been determined under subsection 196B(3) of the VEA; then the factors in that Statement of Principles apply in accordance with the terms of that Statement of Principles as in force from time to time.